What we do
We listen
We work very hard to hear the view of parent carers. Each of our local forums hold many local meetings a year and last year we held over 60 regional meetings to listen to what parent carers are saying. At our conference, over 200 parent carers came together and discussed themes that had been chosen by them. Through this work we speak face to face with many thousands of parent carers each year.
We have very active social media platforms where we share successes and issues and we integrate these messages into our work. We also run a number of surveys each year to gather evidence on those areas that are the biggest priorities for our members.
We develop clear policy positions
We take all this information and use it to develop policy positions for the NNPCF. We take the different messages, stories and data we get and distil them into clear positions or “talking points”. We try to draw out the big, national themes and illustrate them with local examples. However, this doesn’t mean that every local problem is picked up by the NNPCF. We have to concentrate on those issues that the most forums are raising with us. You can find a list of our current priorities here [link to our talking points] which we believe are very representative of the biggest issues being faced by families living with SEND across the country.
We represent these positions to people who make decisions
Once we have understood the priorities of our members, we figure out who we need to raise them with in order to make a difference. We map our priorities to the people that can influence them and we go and see them. We do this through organising one to one meetings with Ministers, regular meetings with advisers and officials, sharing ideas with charities and national associations, and by attending national boards and working groups. For example, our membership told us that employment opportunities for young people with SEND was an issue and we have developed links with the Department for Work and Pensions disability employment strategy team. Likewise, our membership told us of many issues about how they work with local authority services and we have developed links with the Association of Directors of Children’s Services in response.
We feedback on what we have said and what we have heard
It is essential that our membership knows what we are doing and what we have heard. We feedback to them so that they can understand how what they are saying to us shapes the work we do.
We feedback through a variety of means. We post updates on our website , we post on our social media groups, we produce a joint bulletin magazine with Contact each term, we hold regular regional meetings to brief members face to face, we produce an annual report (Found on “Our work at a glance” page) and we hold an annual conference each year.
We feedback on what we have said and what we have heard
It is essential that our membership knows what we are doing and what we have heard. We feedback to them so that they can understand how what they are saying to us shapes the work we do.
We feedback through a variety of means. We post updates on our website , we post on our social media groups, we produce a joint bulletin magazine with Contact each term, we hold regular regional meetings to brief members face to face, we produce an annual report (Found on “Our work at a glance” page) and we hold an annual conference each year.
What we don’t do
We don’t directly provide services to families
Our primary purpose is not to support parents directly or provide them with services. In fact, we believe this would be a conflict of interest because our role is to be honest about the effectiveness of all services that families use and need. If we are delivering these services, it would compromise our ability to be critical.
We don’t advocate individual cases
We do not take on individual cases. However, we are very interested in individual stories because if we start hearing about families with similar experiences, this often leads to a larger national issue down the line. By listening to anecdotal evidence we are able to highlight issues long before official statistics show a problem. We regularly share your anonymised stories with people who make decisions to illustrate national themes and concerns.
