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LGA CCN ISOS Partnership SEND Report

The NNPCFs Response to the LGA CCN ISOS Partnership SEND Report – Towards an effective and financially sustainable approach to Special Educational Needs and/or Disabilities (SEND) in England. 

A copy of the report can be found here. 

The NNPCF agrees that the SEND system is in need of change, in order to for the system to be more effective and to provide strong positive outcomes for those children and young people with SEND.  Whilst the report is a thorough analysis of the key financial issues faced by Local Authorities, we feel that of the views and needs of children and young people and their families now need to be embraced in greater detail, along with wider stakeholders to ensure that change is driven forward in a co-productive way that meets needs and improves outcomes for children and young people.  We hope that this report provides the platform for starting those conversations and we welcome greater involvement with LGA and CCN moving forward. 

The recommendations within the report are far reaching and to comment on every detail of the report, would make for its own report. Therefore, we have included our overarching thoughts on key areas of the report. Overall, the NNPPCF believe this report has positive ambitions and is supportive of the needs of children and young people with SEND and their families.  However, some aspects of the report give rise to concerns, but we accept that there will be differing views on the root causes and potential solutions.  

The NNPCF statement regarding the report, follows the format of the report. 

Part 1: Key findings 

Much of the data presented in Part one of the report is known nationally and is not in dispute.  The report does cover the financial situation of the Local Authorities in detail, however, the interpretation of that data and some of the proposed recommendations do not fully consider other findings and the aims of current programmes of work, including the Change Programme or the long-term implications of the Safety Valve and Delivering Better Value.  The report makes clear that it does not seek to place blame on the “actors” within the report.  While we welcome and support this, some aspects of the of the report could be interpreted as attributing issues around financial sustainability to the views and behaviour of parent carers. 

 
 
Regarding the financial input into the system, there is a strong set of data collected from Local Authorities.  However, this data unfortunately does not take inflation into account, both in terms of funding received and the spiralling costs that are impacting every aspect of life, not just resources for SEND.   Whilst the report references the recent pandemic, we do not feel the monumental impact that this has had on children, young people and their families has been reflected in the report. 

 
 
Part Two: Recommendations 

Recommendation 1: Vision and Guiding principles. 

The NNPCF agree that there is the need for a national vision and a guiding set of principles regarding the SEND system.  Along with the ambition of a future approach to education where children and young people feel valued and capable and that parent carers views are valued and heard (rather than ignored, as the report has stated), we hope that this will go a step further and value full co-production and decision making with those whose lives will be impacted by any decisions made.  

Recommendation 2: A National Framework. 

The NNPCF agree that there could be potential benefits to a National Framework.  However, we have concerns that the proposed classifications of need will not accurately reflect the needs of an individual child or young person. The framework is also limiting as it does not take a holistic approach to the needs of children and young people. 

The framework aims to reduce the need for statutory provision and release capacity so that practitioners can spend more time delivering direct support to children and young people. We support the principal of making best use of practitioners’ time but remain concerned about any reduction of statutory entitlements for children and young people in the current environment. 
 

It is also unclear who would be responsible for establishing a national framework and governing a ‘National Institute’.    

The NNPCF are disappointed that there is no mention of co-production in this report.  Co-production is vital in ensuring that services achieve the best possible outcomes for children and young people with SEND and make the best use of available resources.   Working in co-production with children, young people and their parent carers is also essential for families to have confidence in the SEND system.   

Recommendation 3: Creating a more inclusive mainstream offer. 

The NNPCF agree with the principal of an inclusive local mainstream school system, where pupils have access to a broad and balanced curriculum and the needs of pupils with SEND are consistently met. The ambition for families to be able to have confidence in mainstream education is welcomed.  We are however concerned that there is a lack of flexibility regarding pathways and assessment that could marginalise learners with SEND.  Many of the ‘Life Skills’ offered currently by mainstream schools do not cater adequately for those with SEND and new programmes would need a greater focus on understanding how to deliver such training to a wide cohort.  Accountability within mainstream education (e.g. league tables, OFSTED Inspections, progress 8) would also need to be re-aligned to encourage and enable inclusive practice. 

An adequately resourced SEND system remains at the heart of meeting the needs of our children and young people. This report looks to review the schools’ delegated budget, including notional send funding. The NNPCF welcomes the suggestion of increased accountability on annual reporting on expenditure but are concerned that there is no recommendation to co-produce the model of additional needs funding. 

Often school buildings, including new school buildings, do not take the needs of pupils with SEND into consideration. Quiet rooms and spaces for tailored, targeted teaching to take place are necessary for mainstream schools to physically be inclusive to all. This is something that needs to be considered and addressed as important as it is to ensure a building is physically inclusive, (by way of access and space, the environment, class sizes etc.) the culture of a school is equally important in creating a truly inclusive environment for children and young people with SEND.  

There is also a need for robust provision place planning to be carried out to ensure that there are enough placements for all children and young people, including those with pupils with SEND locally.  There must be a sufficiency of transport and other support services to ensure that children and young people are able to successfully access education.  Currently, too many children and young people are placed in provisions that are a long distance from home and this impacts on inclusion in their local communities. 

Overall, the NNPCF welcomes the focus on inclusion, access to specialist support, reforming teacher training, redefining the meaning of a good school and an increase in accountability is within this report.   

Recommendation 4: Reforming the statutory framework for inclusion. 

The NNPCF agree with the principal of a statutory framework that incentivises an inclusive system. Families want accountability within the system, however there are some aspects of the report narrative that we disagree agree with.  When tribunals rule overwhelmingly in favour of families it is clear that legislation relating to SEND is not being adhered to.   We know that the decision for families to appeal to tribunal is not taken lightly. The financial, emotional and mental strain that families experience is significant and is not fully acknowledged in the report. 

The report suggests that legislation relating to SEND is impossible to implement and therefore fundamentally flawed.  The report points to tribunal outcomes as evidence of this and suggests that parental preference is not sustainable moving forward.  We do not agree with these conclusions.  At the heart of the tribunal system are children and young people whose needs are not being met and whose parent carers are using whatever means at their disposal to rectify this.  We are concerned that this is not acknowledged fully in the report. 

The report states its ambition is to “pivot away” from “individual legally enforceable entitlements”. The NNPCF find this hugely concerning. 

The NNPCF would also like clarity on the proposed replacement for the protected and legislated definition of SEND. Whilst we agree the term is broad, it is the support that sits around the definition we are most concerned with. The NNPCF suggests that to amend the legislated definition at time when there is so much contention within the system, would not build the confidence in the system that is needed, and the report clearly identifies. The NNPCF suggest that the focus should be on increasing the inclusivity of the mainstream environment, to build the confidence and then co-produce a clear and defined definition with children, young people and their families.  

Whilst moving towards the suggested learner records, it is unclear how the accountability to provide the support will work and how these documents will be quality assured which is often the issue with the current pupil profiles and IEPs (Individual Education Plans). 

Regarding admissions and enforced admission into a school, it appears to remove the right of families to choose the best school for their child(ren) and waters down their rights to appeal a placement decision.  There are also concerns about the proposed dispute resolution process, the lack of clear timelines and independent conflict resolution processes. 

Whilst a SEND system that is needs led, may result in a system of reduced diagnosis, the report does not consider that to access many adult services and benefits a diagnosis is required. 

Recommendation 5: Preparation for Adulthood 

The NNPCF welcome a review of children’s and adult services and agree with the ambitions of improved transition and preparation for adulthood.  Often systems are not aligned, adult services are not aware of these families when they turn up for support. We also know that transition into the next steps, whether it’s a new school, new classroom, college or work are stumbling blocks for many of those with SEND.  We would also suggest that more collaboration with employers is needed, so they are aware of these changes and included in this area of development. 

The NNPCF welcomes the standardisation of age in which a CYP transitions to adult services, across Education, Health and Social Care, thus addressing the variation of age ranges which currently impact on a smooth and clear transition into adulthood across a variety of services. 

However, whilst we welcome a standardised age for transition the NNPCF have concerns regarding the three defined categorises of need and the level of support that is attributed to them. How would the level of support be defined? What if a young person’s needs change during ages of 18-20, or indeed beyond for the additional discretionary support?  

It is also unclear if the rights currently extended to young people until 25 are protected. For example it is also unclear if the rights currently extended to young people until 25 are protected, for example their entitlement to an EHCP, is the reports intention that such entitlements continue? 

The NNPCF have therefore reservations over the age range and feel that it needs to be clearer and more defined. Whilst the report relates to discussions it was clear that there was no “clear cut” outcome and we feel that further discussions would be needed to make and changes co-produced with both young people and their families to ensure that suggestions in the report, meet the needs of those it intends to support.  

Overall, the NNPCF  agrees with supporting those with the greatest need, however, feel the categories may impact on the level of support some young people can access, and are concerned that the , mainstream SEND cohort are going to be disadvantaged in this recommendation and if more SEND pupils are going to be included into mainstream, how will these individuals be supported for Preparation for Adulthood? 

Recommendation 6: Realigning powers and responsibilities.  

The NNPCF agree with the ambition of this recommendation and welcome the involvement of PCFs and the voice of children and young people with SEND within the proposed Local Inclusion Partnership boards. We hope that by the inclusion of children and young people and their families, it will ensure that the reality and lived experience, is embedded into strategic discussion and will then influence and shape true co-production across the local area. 

The NNPCF also welcome a strengthening of commission across all services through a local inclusion fund, but this needs to be done in co-production with those in the local area, and which include the voice of parent carers and children and young people as equal partners.  

It is noted that within the report, the redistribution of funding streams from post 16, into the delegated budgets of providers, this is contingent on the preparing for adulthood recommendations meeting the needs of young people, of which we have reservations. Redistributing funding streams, whilst may seem simplistic the implications for commissioned providers are far reaching, with current offers attached to existing contracts and service specifications, which the report we feel has failed to give thought and time into the process to amend.  

Given the current financial pressures of both the high needs block, where there are significant overspends and with ICBs, many of whom have gone into “triple lock”, we are concerned about the “possibility” of setting up a legal framework to support the shared equity of these arrangements. Whilst the report suggests that “the goals of reform in this area are relatively simple” to achieve this would be and increase complexity in the system and doesn’t consider the overlapping and at times complex geography of Local Authorities and ICBs. We believe this could further embed post code lotteries for support, which will only serve to place children and young people at a disadvantage. 

We would also suggest further clarity regarding the commissioning of the PCFs and SENDIASS is needed. It is important that both Parent Carer Forums and SENDIASS service remain independent bodies.  We would however, like to see both being consistently jointly commissioned by Local Authorities and ICBs. 

Whilst we understand the purpose of this report is to redefine support to ensure it is cost effective, we remain concerned about the implications this will have on young people.   

Recommendation 7: The role of the independent sector. 

The NNPCF agrees with the ambition laid set out.  The independent sector has grown immensely over the last 10 years, for a variety of reasons, including lack of local provision planning and where there has been a reduction in the ability of mainstream schools to meet the needs of the children and young people.  

The cost of the independent sector is not disputed. However, the independent sector frequently offers a bespoke offer of care, which can involve a substantially higher level of intervention, support and personal care for children and young people, often whom may have complex needs. That level of bespoke care may not be routinely commissioned and accessed within mainstream or specialist provision in the local area.   

Whilst we accept that the issue of an independent placement can become the subject of debate between parent carers and the Local Authority. We must, however, understand that this is often to a due lack of strategic long-term planning, lack of investment from central government to build suitable and inclusive schools, and schools which do not operate within inclusive practice, so an independent placement is often the only place that can meet a child or young person needs.  

We are concerned that to remove a judicial body which can order such a placement could mean that children and young people are placed in settings that are unable to meet need. and the longer term harm this may cause the child.. We would strongly advocate that the sustainability and confidence in the system must be created ahead of any consideration and consultation, that included the wider public, of removing the judicial process.  

The NNPCF does however fully support the endeavours of this report in which it clearly states that independent settings should not be able to profit though the provision in which offers.  

Recommendation 8: Developing a national workforce strategy. 

The NNPCF agrees with the rationale, ambition and the proposal of this recommendation.  This is featured in the SEND AP implementation plan work. The Change Programme Partnership has not fully tested the changes that it needs to and therefore the direction of travel has not been fully established. 

Workforce was an issue pre-covid and continues to be an ongoing issue. Workforce retainment is also a concern, along with those in rural areas not being able to recruit, as potential new recruits cannot afford to live in certain areas. It is not just about training; it is also about retaining and developing good workforce who are inclusive and deliver well for not only SEND pupils but all pupils. 

In conclusion, whilst there are many merits to this report, the NNPCF believe that this is an oversimplification of the issues faced by the SEND system and steps needed to resolve those issues.  We also do not feel that a system can change without full co-production between all stakeholders, including the voices of the families, children and young people. We are deeply concerned about the suggested timelines and believe that the time to influence and implement change has been vastly underestimated.  Whilst this report is a start, more information and discussion are required to create a comprehensive action plan and to understand the impact of the improvement and innovation programmes currently underway. 

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NCMD Report: Learning from deaths: Children with a learning disability and autistic children

The NNPCF worked with other stakeholders to have input into a new report. The report draws on data from the National Child Mortality Database (NCMD) to investigate deaths in children with a learning disability and autistic children, and to draw out learning and recommendations for service providers and policymakers.

The report has now been published and you can view it in full here: https://www.ncmd.info/publications/child-death-learning-disability-autism/

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What is the national curriculum and why is it being reviewed?

A new post has been published on the Education Hub. “The national curriculum is a set of subjects and standards used by primary and secondary schools, so children learn the same things. We’ve announced that we’ll be holding an independent review to refresh the curriculum and make sure it meets the needs of every child and young person. The Curriculum and Assessment Review will be led by Professor Becky Francis CBE who is an expert in education policy including curriculum and social inequality. The views of experts, parents and teachers will be key for making recommendations.”

You can read the post in full here: https://educationhub.blog.gov.uk/2024/07/19/what-is-the-national-curriculum-and-why-is-it-being-reviewed/

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The King’s Speech

A new post, “The King’s Speech 2024: What does it mean for education?” has just been published on the The Education Hub blog.

During the State Opening of Parliament on Wednesday 17 July, the King set out the government’s priorities for the coming months. This included commitments relating to education, including children’s social care, schools, and further education. Together, these important changes will help to break down barriers to opportunity, and drive high and rising standards in schools, to create better life chances for everyone. Here, we explain what the King’s Speech means for young people, parents and the education sector. You can read more about the King’s Speech and how it works on Gov.​uk by following this link: https://educationhub.blog.gov.uk/2024/07/18/the-kings-speech-2024-what-does-it-mean-for-education/

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New Steering Group Member for the South West

We would like to welcome Kenton Mee, from North Somerset Parent Carer Forum to the South West NNPCF representative role.

On his appointment Kenton said, “I am delighted to be appointed as the NNPCF’s Regional Steering Group Member for the South West. I extend my thanks to Tina for her incredible achievements in developing and representing the South West PCF network over the past seven years. I am committed to continuing her excellent work and look forward to supporting and representing our 15 Forums. Championing the lived experiences of our parent carers to help inform the national picture and continuing to develop our work with stakeholders across the region.”

Tina Emery said, “I am really pleased that Kenton is going to take over the South West role. He has worked incredibly hard in North Somerset with his local authority and his ICB, and is an active member of the South West region. He is going to do amazing things with all the 15 forums working alongside regional partners.”

We would like thank Tina Emery for all her hard work and the commitment to the South West regional representative role, as well as her role as CoChair, Tina is going to be missed but we look forward to welcoming Kenton. We wish Tina, the very best with her next adventure.

Tina is currently handing over to Kenton. Tina’s term will end in September and Kenton will take over the role fully in October.

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NNPCF meet with DfE

The NNPCF team met last week for a planning day at the Department of Education. It was an opportunity, for us to all get together as a team, to plan and to say our face-to-face goodbyes to both Kath and Tina who are stepping down shortly as their appointed terms have come to end. We were also able to welcome both Martin and Kenton who are joining our team as the North West and South West Representatives respectfully.

Whilst at the DfE, we also had the opportunity to speak with Alison Ismail who is the Director of SEND and Alternative Provision, Katharine Davies and Eleanor Jubb Heads of Transitions and Coproduction in the SEND & Alternative Provision Directorate, about what’s important to our SEND families, our Parent Carer Forums and the need for change within the SEND system.

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NNPCF meet with new Secretary of State for Education

NNPCF welcomed the opportunity to attend the DfE Ministerial Reception on 11th July 2024. We were able to talk directly to the Secretary of State Bridget Phillipson, Stephen Morgan, Catherine McKinnell and Jacqui Smith, highlighting the importance of the lived experience of our SEND families, along with the importance of coproduction and highlight local Parent Carer Forums and the great work they do.

The evening also gave us an opportunity to speak with other key stakeholder partners including Amanda Allard, Director of the Council for Disabled Children, and Anna Bird,  Chief Executive Officer at Contact.

We hope that with the government will bring the much needed change within the SEND System for our families.

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NNPCF become re-accredited with the Communications Access Symbol

The Communications Access Symbol is an initiative developed in partnership by charities and organisations that share a vision to improve the lives of people with communication difficulties. The disability access symbol scheme is led by the Royal College of Speech and Language Therapists and was coproduced with a number of stakeholders including the NNPCF.

A completely free training package is available to any individual or business that wishes to sign up to the symbol. Some businesses that have signed up to the symbol include various Job Centres, Universities, Banks and Buildings Societies, and some NHS trusts among many others!

We are delighted to say the NNPCF have recently been re-accredited, for the 2nd year, with a number of our Steering Group, Operational Support team and National Representatives completing the training.

We would encourage you to take a look at the scheme and sign up to the training. If you would like to mention it to your Local Authorities and ICS’s please feel free to do so, to encourage their sign up as well!

You can find out more at https://communication-access.co.uk/

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New Steering Group member for the North West

We would like to welcome Martin McAndrew, from Bury Parent Carer Forum, to the North West NNPCF representative role.

On his appointment Martin said, “I look forward to taking on this role and hope to do half as good a job as Kath has. Really excited about meeting and supporting all of our amazing PCF’s to keep doing the great work that they all do.”

Kath Bromfield said, “It is a real strength of NNPCF that reps can only do a maximum of two terms. I have thoroughly enjoyed my time representing the North West and am delighted to pass the baton to Martin who will be amazing and see the region go from strength to strength.”

We would like thank Kath Bromfield for all her hard work and the commitment to the North West regional representative role, she is going to be greatly missed and we look forward to welcoming Martin.  We wish Kath, the very best with her next adventure.

Kath is currently handing over to Martin.  Martin will take over the role fully in August.

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New Co-Chair Announcement

The NNPCF are delighted to announce that Jo Harrison, Steering Group member for the East of England, has been elected as the NNPCF incoming Co-Chair, as Tina Emery prepares to step down.

Tina has been the South West representative for two full terms and has been Co-Chair for five years. Tina will be stepping down at the end of her term, in September 2024, and in the meantime will start the process of the Co-Chair handover. We are currently in the process of recruiting a new South West representative and look forward to welcoming the new Steering Group member soon.

Jo has been an active member of the NNPCF as National and Regional representative for many years and has been an active member of the Steering Group since her appointment.

On her appointment Jo Harrison said:

“Parent Carer Forums are amazing and dedicated parent carers who make such a difference to the families that they support on top of their own caring responsibilities, so I feel very privileged to represent the families of our membership, along with Sarah, whom I hope I will compliment, as the Co-Chair of the NNPCF.

It’s been a pleasure working with Tina since I started working with the NNPCF in 2019, I know she will be missed and that I have big shoes to fill.

The NNPCF has an amazing Operational Support Team and Steering Group who have a wealth of knowledge, are dedicated and work with such passion to improve outcomes for families and I feel privileged to be part of such an amazing team!”

On stepping down Tina Emery stated:

“I have thoroughly enjoyed doing this role and it has been an opportunity of a lifetime. I have seen a transition with NNPCF in my tenure and I am so proud of what we have achieved as a team, and I am excited to see what happens next!

To all the Parent Carer Forums, you have been amazing and made my job a lot easier, thank you for all your hard work that you do on top of your caring responsibilities.

Congratulations to Jo, who will be amazing!”

Co-Chair Sarah Clarke added;

“One of the strengths of the NNPCF, is that it continues to grow, evolve and develop with every Co-Chair and new Steering Group member. In the last year, as a Steering Group and Operational Team, we have spent some time focusing on internal processes, how we can make the greatest impact and ensure that the value of coproduction at every level becomes embedded everywhere.

I have enjoyed my time working closely with Tina and have learnt so much. Tina will be with us for a few months yet, but when the time comes, we will be wishing her the very best on her new adventures.

As we continue to grow as an organisation, I am very much looking forward to continuing to build upon our work together with Jo and as a whole team, along with our wonderful Parent Carer Forums and all our stakeholders.”