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Contact for families with disabled children DCP NNPCF Steering Group

Disabled Children’s Partnership launches new campaign

On Monday 17th January, the Disabled Children’s Partnership (DCP) will launch a new campaign to highlight the need for SEND to be prioritised and properly funded in April’s local authority budgets.

PCFs and this campaign share a common goal of improving services and outcomes for CYP with SEND and the NNPCF and Contact have been calling for the right prioritisation of SEND and the allocation of sufficient resources to deal with the growing crisis for many years – for example, the NNPCF raised this in the 2018 State of the Nation report (State of the Nation Reports – National Network of Parent Carer Forums C.I.C (nnpcf.org.uk)) and this has formed a key plank of the NNPCF’s messages to the SEND review (Latest developments on the SEND Review – National Network of Parent Carer Forums C.I.C (nnpcf.org.uk)). Local forums have echoed these messages in their meetings with local strategic partners in town and county halls across the country.

The NNPCF and Contact’s participation team have been working with our colleagues at the DCP ahead of the launch of the campaign to ensure that the work of parent carer forums is recognised and leveraged within the campaign, and so that individuals are signposted to their local PCF:

  • PCFs would agree with the core messages of the campaign that CYP with SEND and their families need greater prioritisation and resourcing in local areas
  • Forums and local campaigners could work together to achieve mutual aims – co-production and campaigning can be complementary activities
  • Much of the research compiled by DCP to support this campaign may be very useful to forums in their conversations with local authorities and health commissioners.

We recognise that the campaign may result in some forums experiencing challenge from local campaigners who may not understand the way in which forums work, so we want to remind you of some of the resources that Contact’s participation team and the NNPCF have produced on how forums can work with or alongside campaign groups when they have the same aim – you can find them via the links below:

co-production_and_campaigning_guidance.pdf (contact.org.uk)

Co-production, Campaigning & the Independence of Parent Carer Forums Webinar Recording – YouTube

The campaign may also result in parent carers who were previously unaware of their local PCF wanting to join, or local groups wanting to make links with the forum.

We wanted to make you aware of the campaign ahead of the launch.  Forums can then make informed choices about whether they wish to take part, or if they have the capacity to take part.

PCFs may also find the resource and research pack useful in their work with their local areas.

If you would like any further information or support, please contact your Contact Parent Carer Participation Advisor, or your NNPCF regional steering group member.

NNPCF and Contact

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Contact for families with disabled children NNPCF work

NNPCF and Contact announced as strategic parent carer coproduction partners for CYP learning disability and autism team


In a joint bid, NNPCF and Contact have been awarded a three year contract to be the strategic partners for NHS England’s Children and Young People’s Learning Disability and Autism Team, focussing on parent carer coproduction.

This means that the NNPCF will be involved in key elements of the development, implementation and review of the NHS Long Term Plan in relation to children and young people with a learning disability or autism (LDA).

The contract covers areas such as:

  • The response to covid 19
  • Supporting regional and local parent carer forums to engage in the NHS Long Term Plan
  • Sharing information with parent carer forums about the long-term plan and providing feedback to the NHS LDA team on the lived experience of families
  • Attending key boards and decision making bodies.

We have already started this work. Find more:

This contract is limited to national work. We believe that the NHS should also fund regional and local PCFs. Decision making and monies around regional and local implementation are devolved to the NHS regions and we continue to have conversations with regional NHS leaders to secure funding for all PCF regions (currently only the South West is funded).

Find out more about what the NHS Long Term Plan says about learning disabilities and autism.