consultations NHS England

The Draft Core Capabilities Framework for the Transition of Young People into Adult Services in England-national consultation


The Framework articulates the core capabilities describing the knowledge, skills and behaviours required by all healthcare staff working with young people who are transitioning to adult services. Currently there is no national framework that addresses this need.

This Framework is part of a wider programme of work and will build upon and be complementary to previous and current work undertaken by NHS England and Improvement (NHSE/I) and the Burdett National Transition Nursing Network. It will support this ongoing work of the need for the successful transition of young people between children’s and adult services as identified by the NHS Long Term Plan.

The current draft capabilities have been developed by a national steering group of experts as well as young people and parents. We are going out to wider consultation on the capabilities themselves which will form the key part of the Framework document. The Framework will also describe the context and background. 

The development of a Core Capabilities Framework will provide the health sector with a starting point to identify education and training currently available, as well as identifying any gaps. In the future this will assist the application of a consistent approach to training for the successful transition of young people between children’s and adult services.  It will be applicable to both clinical and non-clinical staff across all levels of roles in the workforce.

Whether you are a healthcare member of staff, young person, parent or carer your views are very important to the development of the Framework and thank you for taking the time to complete this survey.

The survey will be live from Monday 12th July until Sunday 22nd August 2021.

Link to more information and the survey:

Children and Young Person’s (CYP) Transformation Programme Team

Medical DirectorateNHS England & NHS Improvement

consultations NNPCF work SEND Review

NNPCF work to improve accountability in the SEND system

One of the four priority areas for the NNPCF this year is to improve the accountability across the SEND system – to ensure that those bodies with responsibilities to support children and young people with SEND actually deliver what they are required to (please see the presentation at our AGM in March for the other priorities Microsoft PowerPoint – AGM slides 20210315 (

We are actively working to improve this accountability across three separate projects:

The Single Route of Redress

For the last 3 years, a national trial has been running that allows the SEND tribunal to make non-binding judgements on health and social care services, if there is also a valid educational concern. The evaluation period for the trial has now ended and Ministers are due to make a decision about whether to mainstream the trial powers of the tribunal. The trial period itself ends on the 31 August 2021.

The NNPCF has been clear that we would like to see this trial made permanent and has been participating in meetings with the Department for Education and the Ministry of Justice. Although not possible at present, we would also like to see the powers of the tribunal extended to make binding recommendations on health and social care in the future.

You can see the quarterly updates from the single route of redress national trial here Newsletters – Mott MacDonald (

Local area inspections

Ofsted and the Care Quality Commission have been looking at how the next round of local area inspections should be structured. It is clear that the focus will need to move from an implementation of the SEND reforms onto an assessment of how well local areas are meeting the needs of CYP with SEND and improving outcomes. As a part of this we would like to see the inspectorate focus on things such as how well do local education, health and care plan and deliver services together, how SEND money is spent in the system, early

intervention, inclusion in mainstream schools and coproduction with families and parent carer forums.

We are also pleased to see that the current round of local area inspection are due to resume. See the announcement and guidance from Ofsted. Ofsted: coronavirus (COVID-19) rolling update – GOV.UK (

The SEND review

We also believe that legislative and regulatory changes to the SEND system are required to improve accountability. We have shared these ideas with the SEND review team. These include:

· A consistent national definition of services that available to families with some minimum standards

· Time limits lined for delivery of services

· Guidance on who pays for what across the system

· More transparency on how money is spent

· Gather smarter statistics to show where services are not meeting standards

You can see more on the input we have put into the SEND review in our presentation to the joint NNPCF / Contact conference in March.

consultations Social Care

NNPCF input into children’s social care review

In January, the government announced a review into children’s social care. Independent review of children’s social care – GOV.UK (

The NNPCF have been working with the review team to ensure the voice of parent carer forums is heard and that the review understands and considers the unique challenges faced by our families.

NNPCF co-chairs Tina Emery and Mrunal Sisodia met with the officials leading the review in March. In our meeting, we described the work of parent carer forums and our unique role in representing the experiences of families and in coproducing improved outcomes. We also raised five issues that we wanted to make sure that the review considered:

  1. Support not safeguarding” – Much of the social care system is focussed on safeguarding and the approaches and systems are too often based in this model. CYP with SEND and their families need support from the social care system and the bias towards safeguarding means that families slip through the net and further families are reluctant to engage with social care.
  2. Input into EHCPs – PCFs report that social care input into EHCPs remains patchy- often there is no input or that input is very superficial.
  3. Consistency and criteria – there is a postcode lottery for social care services. Some areas recognise children with SEND and children in need, most do not; many areas have different (and high) thresholds for services.
  4. Availability of services – many social care services that families would benefit from are simply not available to too many. Thresholds and cuts mean that respite care, residential care and short breaks are in short supply. Children’s social care must be prioritised and funded properly.
  5. Prioritisation with the NHS integrated care systems – we must ensure that children’s social care is included in plans being developed by the new integrated care systems.

We have arranged a series of engagement events with the social care team. These include:

  • Attendance at regional NNPCF meetings in the Yorkshire and Humber and London regions to hear directly from PCFs
  • Joining the East of England and South West SEND regional leads meeting
  • Attending an NNPCF steering group meeting in June
  • Josh MacAllister, the independent chair of the review, will be meeting with the NNPCF co-chairs

After these and other engagement events, the review plans to publish a “case for change” in early June. Josh MacAllister has agreed to run a webinar for PCFs to brief them on the key areas of focus for the review and how the experiences of CYP with SEND are reflected in their agenda.

The review is also working with our partners at Contact and the Disabled Children’s Partnership to meet with a roundtable of charities and individual parents to hear their stories.

We will keep you informed of our work and will share details of the webinar with Josh once they have been finalised.


National Strategy for Disabled People Consultation

The Disability Unit at Cabinet Office is developing a National Stratgey for Disabled People, which publication planned for Spring 2021. The Disability Unit has launched the UK Disability Survey (link below) and we want to hear from as many people as possible. We are particularly keen to hear from disabled people, their carers, friends and family but views from the wider public are also very welcome. The survey will remain open until 23rd April, and all views will be used to shape the delivery of the plans we set out in the Strategy with those that we receive by 13th February informing its development.

We’ve tried to make sure the survey which is hosted on Citizen Space is as accessible as possible. It is available in Easy Read, BSL and written responses can be sent to: A braille version is available on request and blind or partially sighted people who are having difficulty filling in the online survey can email RNIB for advice or support at:

consultations DfE guidance

NNPCF conference gives SEND Review seven clear messages

Parent carer forum delegates from across the country gave the SEND review team a great demonstration of the knowledge, passion and determination of parent carer forums at the annual NNPCF / Contact Conference on the 7th November in Chester.

196 delegates from 88 local areas engaged in an exercise to explore solutions to the issues facing the SEND system. They produced hundreds of recommendations, examples and challenges for the review team to consider.

The key messages grouped into seven themes, based on feedback that the NNPCF heard from member forums. These were:

  • Listen to families and intervene early
  • Make sure there is enough money and spend it well
  • Align incentives for school and system leaders
  • Increased accountability
  • Right people, right knowledge, right skills
  • Lifelong outcomes
  • Coproduction

You can find a copy of the report from our conference here;

This session built upon the work that the NNPCF steering group had already done in engaging with the SEND review at several meetings prior to the event including a session at which the SEND review team attended an NNPCF steering group meeting. You can find an update on our earlier work here

The NNPCF are planning further regional events with the review team. We will keep you posted on these.

Department for Education SEND Review

NNPCF engagement with the SEND Review

At the NNPCF conference on the 7th November, delegates will have the opportunity to create solutions to the issues facing families for input into the SEND review.

In September, the government announced a “Five years on” review of the SEND system. The NNPCF were delighted with this announcement as the we had asked Nadhim Zahawi, the previous Minister for Children and Families for a clear cross governmental strategy for SEND when we met with him in July.

The NNPCF has been heavily engaged in the early stages of the SEND review, working to ensure that the voice of parent carers is central it work. At the onset of the review we met with Kemi Badenoch, the Minister for Children and Families and asked her to ensure that the review was truly cross governmental and came up with real, hard hitting recommendations that address the root causes. You can find a record of our meeting here

Since then, NNPCF co-chairs Tina Emery and Mrunal Sisodia have met with the head of the review team to explain the work of parent carer forums, our lived experience of the SEND system and make some recommendations about what we think needs to change.

In October, members of the SEND review team attended the NNPCF steering group meeting. In our session, we shared feedback from our members on some of the root causes of the issues in the SEND system and suggested a series of changes that would make the system work more effectively for families.

We will also be hosting a session on the SEND review at our annual conference on the 7th of November when attendees will have the opportunity to co-produce some of the solutions to the issues that the SEND system faces. Although they are unable to lead the session because of restrictions on government activities during an election period, members of the SEND review team will be in attendance.

We are also working with the SEND review team to create more opportunities for parent carer forums including working with regions. We will keep you posted.